Page:United States Statutes at Large Volume 114 Part 4.djvu/280

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114 STAT. 2342 PUBLIC LAW 106-505—NOV. 13, 2000 shall prepare and submit to the appropriate committees of Congress a report containing data relating to whether the increased availability of defibrillators has affected survival rates in the communities in which grantees under this section operated. The procedures under which the Secretary obtains data and prepares the report under this subsection shall not impose an undue burden on program participants under this section. (e) AUTHORIZATION OF APPROPRIATIONS.— There is authorized to be appropriated $25,000,000 for fiscal years 2001 through 2003 to carry out this section. Lupus Research TITLE V—LUPUS RESEARCH AND CARE up and Care Amendments of 2000. 42 USC 201 note. 42 USC 285d-6a note. SEC. 501. SHORT TITLE. This title may be cited as the "Lupus Research and Care Amendments of 2000". SEC. 502. FINDINGS. The Congress finds that— (1) lupus is a serious, complex, inflammatory, autoimmune disease of particular concern to women; (2) lupus affects women nine times more often than men; (3) there are three main types of lupus: systemic lupus, a serious form of the disease that affects many parts of the body; discoid lupus, a form of the disease that affects mainly the skin; and drug-induced lupus caused by certain medications; (4) lupus can be fatal if not detected and treated early; (5) the disease can simultaneously affect various areas of the body, such as the skin, joints, kidneys, and brain, and can be difficult to diagnose because the symptoms of lupus are similar to those of many other diseases; (6) lupus disproportionately affects African-American women, as the prevalence of the disease among such women is three times the prevalence among white women, and an estimated 1 in 250 African-American women between the ages of 15 and 65 develops the disease; (7) it has been estimated that between 1,400,000 and 2,000,000 Americans have been diagnosed with the disease, and that many more have undiagnosed cases; (8) current treatments for the disease can be effective, but may lead to damaging side effects; (9) many victims of the disease suffer debilitating pain and fatigue, making it difficult to maintain employment and lead normal lives; and (10) in fiscal year 1996, the amount allocated by the National Institutes of Health for research on lupus was $33,000,000, which is less than one-half of 1 percent of the budget for such Institutes. Subtitle A—Research on Lupus SEC. 511. EXPANSION AND INTENSIFICATION OF ACTIVITIES. Subpart 4 of part C of title IV of the Public Health Service Act (42 U.S.C. 285d et seq.) is amended by inserting after section 441 the following: