PUBLIC LAW 109–347—OCT. 13, 2006
120 STAT. 1949
(D) information from any such monitoring and studies is used to prevent or protect against similar health impacts from future disasters. (2) ACTIVITIES.—A program under paragraph (1) may include such activities as— (A) collecting and analyzing environmental exposure data; (B) developing and disseminating information and educational materials; (C) performing baseline and followup clinical health and mental health examinations and taking biological samples; (D) establishing and maintaining an exposure registry; (E) studying the short- and long-term human health impacts of any exposures through epidemiological and other health studies; and (F) providing assistance to individuals in determining eligibility for health coverage and identifying appropriate health services. (3) TIMING.—To the maximum extent practicable, activities under any program carried out under paragraph (1) (including baseline health examinations) shall be commenced in a timely manner that will ensure the highest level of public health protection and effective monitoring. (4) PARTICIPATION IN REGISTRIES AND STUDIES.— (A) IN GENERAL.—Participation in any registry or study that is part of a program carried out under paragraph (1) shall be voluntary. (B) PROTECTION OF PRIVACY.—The President, acting through the Secretary of Health and Human Services, shall take appropriate measures to protect the privacy of any participant in a registry or study described in subparagraph (A). (C) PRIORITY.— (i) IN GENERAL.—Except as provided in clause (ii), the President, acting through the Secretary of Health and Human Services, shall give priority in any registry or study described in subparagraph (A) to the protection, monitoring and study of the health and safety of individuals with the highest level of exposure to a substance of concern. (ii) MODIFICATIONS.—Notwithstanding clause (i), the President, acting through the Secretary of Health and Human Services, may modify the priority of a registry or study described in subparagraph (A), if the President, acting through the Secretary of Health and Human Services, determines such modification to be appropriate. (5) COOPERATIVE AGREEMENTS.— (A) IN GENERAL.—The President, acting through the Secretary of Health and Human Services, may carry out a program under paragraph (1) through a cooperative agreement with a medical institution, including a local health department, or a consortium of medical institutions. (B) SELECTION CRITERIA.—To the maximum extent practicable, the President, acting through the Secretary of Health and Human Services, shall select, to carry out
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