12 2 STA T . 2 6 2 9PUBLIC LA W 11 0– 2 85—J UL Y 29 , 2008 (1)encourag e th e s u p port f or pe di atric cancer research and other acti v ities re l ated to pediatric cancer
( 2 ) esta b lish a co m prehensive national childhood cancer registr y
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( 3 ) provide informational services to patients and families affected by childhood cancer .SEC.4 . P E DIATR IC CA N CER RESEARC H AND A W ARENESS
NATI O NA L CHILDHOOD CANCER RE G ISTR Y . (a) PEDIATR I CC A N CER R E S EARC H AND AW ARENESS. —S ubpart 1ofpartCoftitle IV of the Public H ealth Service Act ( 4 2 U .S.C. 2 85 et se q .) is amended by adding at the end the follo w ing
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‘SEC. 4 17 E. PEDIATRIC CANCER RESEARCH AND AWARENESS. ‘ ‘(a) PEDIATRIC CANCER RESEARCH.— ‘‘(1) PR OG RA M SO F RESEARCH E X CE L LENCE IN P EDIATRIC CANCER.— T he Secretary , in collaboration with the D irector of N IH and other F ederal agencies with interest in prevention and treatment of pediatric cancer, shall continue to enhance, e x pand, and intensify pediatric cancer research and other activi - ties related to pediatric cancer, including therapeutically applicable research to generate effective treatments, pediatric preclinical testing, and pediatric clinical trials through National Cancer Institute-supported pediatric cancer clinical trial groups and their member institutions. In enhancing, expanding, and intensifying such research and other activities, the Secretary is encouraged to ta k e into consideration the application of such research and other activities for minority, health disparity, and medically underserved communities. For purposes of this section, the term ‘pediatric cancer research ’ means research on the causes, prevention, diagnosis, recognition, treatment, and long-term effects of pediatric cancer. ‘‘(2) PEER RE V IEW RE QU IREMENTS.—All grants awarded under this subsection shall be awarded in accordance with section 4 9 2. ‘‘(b) PU B LIC AWARENESS OF PEDIATRIC CANCERS AND AVAILABLE TREATMENTS AND RESEARCH.— ‘‘(1) IN GENERAL.—The Secretary may award grants to childhood cancer professional and direct service organi z ations for the expansion and widespread implementation of— ‘‘(A) activities that provide available information on treatment protocols to ensure early access to the best avail- able therapies and clinical trials for pediatric cancers; ‘‘( B ) activities that provide available information on the late effects of pediatric cancer treatment to ensure access to necessary long-term medical and psychological care; and ‘‘(C) direct resource services such as educational out- reach for parents, peer-to-peer and parent-to-parent sup- port networks, information on school re-entry and postsec- ondary education, and resource directories or referral serv- ices for financial assistance, psychological counseling, and other support services. In awarding grants under this paragraph, the Secretary is encouraged to take into consideration the extent to which an entity would use such grant for purposes of making activities and services described in this paragraph available to minority, health disparity, and medically underserved communities. 42USC 2 85a–1 1 .
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