12 2 STA T .405 2 PUBLIC LA W 110 –37 4 —O CT. 8, 2008 ‘ ‘ (3)POSTNA TA L L YDI A G NOS E D C ONDITION .—Thet e rm ‘ pos t na ta l l ydi a g nosed c ondition ’ means any health condition identi f ied d u ring the 12- month period b eginning at birth. ‘‘( 4 )P R ENATALLY DIAGNOSED CONDITION.—The term ‘pre- natally diagnosed condition’ means any fetal health condition identified by prenatal genetic testing or prenatal screening procedures. ‘‘( 5 ) PRENATAL TEST.—The term ‘prenatal test’ means diag- nostic or screening tests offered to pregnant w omen see k ing routine prenatal care that are administered on a re q uired or recommended basis by a health care pro v ider based on medical history , family background, ethnic background, previous test results, or other risk factors. ‘‘(b) I N F OR M ATION AND SUP PORT SER V ICES.— ‘‘(1) IN GENERAL.—The Secretary, acting through the D irector of the N ational Institutes of H ealth, the Director of the C enters for Disease Control and Prevention, or the A dminis- trator of the Health R esources and Services Administration, may authori z e and oversee certain activities, including the awarding of grants, contracts or cooperative agreements to eligible entities, to— ‘‘(A) collect, synthesize, and disseminate current evi- dence-based information relating to Down syndrome or other prenatally or postnatally diagnosed conditions
and ‘‘( B ) coordinate the provision of, and access to, new ore x isting supportive services for patients receiving a posi- tive diagnosis for Down syndrome or other prenatally or postnatally diagnosed conditions, including— ‘‘(i) the establishment of a resource telephone hot- line accessible to patients receiving a positive test result or to the parents of newly diagnosed infants with Down syndrome and other diagnosed conditions; ‘‘(ii) the expansion and further development of the National Dissemination Center for Children with Disabilities, so that such Center can more effectively conduct outreach to new and expecting parents and provide them with up-to-date information on the range of outcomes for individuals living with the diagnosed condition, including physical, developmental, edu- cational, and psychosocial outcomes; ‘‘(iii) the expansion and further development of national and local peer-support programs, so that such programs can more effectively serve women who receive a positive diagnosis for Down syndrome or other prenatal conditions or parents of infants with a postnatally diagnosed condition; ‘‘(iv) the establishment of a national registry, or network of local registries, of families willing to adopt newborns with Down syndrome or other prenatally or postnatally diagnosed conditions, and links to adop- tion agencies willing to place babies with Down syn- drome or other prenatally or postnatally diagnosed conditions, with families willing to adopt; and ‘‘(v) the establishment of awareness and education programs for health care providers who provide, inter- pret, or inform parents of the results of prenatal tests for Down syndrome or other prenatally or postnatally Adopti o n.Tel ep h one hotline.
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