12 2 STA T .7 11 PUBLIC LA W 11 0– 20 4— AP R .24 , 200 8‘ ‘ (2)car r yout ot he r act iv itie sd eter m i n eda p propriate b y the S ecretary . ‘‘(e) AUTHORIZA TIO N O F A P PROPRIATION S . —F or the purpose o f carryin g out this section , there are authori z ed to be appropriated $1 , 0 00,000 for fisca l year 200 8 , $1,012, 5 00 for fiscal year 200 9 , $1,025,000 for fiscal year 2010, $1,0 37 ,500 for fiscal year 2011, and $1,050,000 for fiscal year 2012. ’ ’. SEC.7 .C ONTI N G ENC YPLA NNING. P art A of title XI of the Public H ealth Service Act ( 4 2 U .S. C . 300b – 1etse q .), as amended by section 6 , is further amended by adding at the end the follo w ing
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‘SEC. 1 11 5 . NATIONAL CONTINGENCY PLAN F O R NE WB ORN SCREENING. ‘‘(a) IN GE NERA L .— N ot later than 180 days after the date of enactment of this section, the Secretary, acting through the D irector of the Centers for Disease Control and Prevention and in consulta - tion with the Administrator and State departments of health (or related agencies), shall develop a national contingency plan for newborn screening for use by a State, region, or consortia of States in the event of a public health emergency. ‘‘(b) CONTENTS.— T he contingency plan developed under sub- section (a) shall include a plan for— ‘‘(1) the collection and transport of specimens
‘‘(2) the shipment of specimens to State newborn screening laboratories; ‘‘(3) the processing of specimens; ‘‘(4) the reporting of screening results to physicians and families; ‘‘(5) the diagnostic confirmation of positive screening results; ‘‘(6) ensuring the availability of treatment and management resources; ‘‘(7) educating families about newborn screening; and ‘‘(8) carrying out other activities determined appropriate by the Secretary. ‘‘SEC. 111 6 . HU NTER K ELLY RESEARCH PROGRA M . ‘‘(a) NE WB ORN S C REENIN G ACTI V ITIES.— ‘‘(1) IN GENERAL.—The Secretary, in con j unction with the Director of the National Institutes of Health and ta k ing into consideration the recommendations of the Advisory Committee, may continue carrying out, coordinating, and e x panding research in newborn screening (to be known as ‘Hunter K elly Newborn Screening R esearch Program’) including— ‘‘(A) identifying, developing, and testing the most prom- ising new screening technologies, in order to improve already existing screening tests, increase the specificity of newborn screening, and expand the number of conditions for which screening tests are available; ‘‘( B ) experimental treatments and disease management strategies for additional newborn conditions, and other genetic, metabolic, hormonal and or functional conditions that can be detected through newborn screening for which treatment is not yet available; and ‘‘(C) other activities that would improve newborn screening, as identified by the Director. 42USC30 0 b–15.Deadlin e. 42 USC 300b–14.
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